People with cleft lip and palate plough through stigma to forge ahead in life
The Hindu
Cleft Con India 2024, an annual platform for individuals with cleft lip and celft palate to come together to share their experiences, was organised in Chennai on Saturday
Arushi Aryan, 18, a resident of Jammu, was born with a cleft lip and cleft palate. When she was 13-years-old, her confidence plummeted after the seniors in her school made fun of her. For some days, she even resorted to wearing a mask to school. The support from her family and close friends slowly armed her with confidence, which continues to shine through even today.
Despite enduring the teasing, even from a school teacher, city-based G. Priyanka, 19, who has undergone 11 surgeries, maintains a positive outlook. “I will be the best version of myself every day,” she said.
Several such stories of resilience came to the fore at Cleft Con India 2024, an annual platform for individuals with cleft lip and celft palate to come together to share their experiences, which was organised in the city on Saturday.
With over 35,000 children born with cleft lip and cleft palate in India each year, many face bullying and isolation due to their condition. If left untreated, the condition can lead to difficulties in eating, hearing, speaking, and breathing. However, timely medical interventions can help children thrive physically and socially.
Organised by Smile Train, the event saw the participation of nearly hundred affected individuals. Mamta Carroll, senior vice- president and regional director - Asia, Smile Train, said, “This is not an event, but a movement of greater acceptance, understanding, and inclusion.”
Actor and voiceover artist Ashwin Kumar, 36, who was born with a bilateral cleft lip, encouraged children and young adults with cleft lip and cleft palate not to consider their condition as a defect, and instead focus on their passion.
At the event, Asha Dinesh and Divya Dinesh, co-founders of Ashraya Hastha Trust, were honoured with the Smile Maker 2024 Award for their contributions to Smile Train, which works with a network of over 120 medical partner hospitals in 30 States and Union Territories to provide free and quality cleft surgery and comprehensive cleft care for children.
“Writing, in general, is a very solitary process,” says Yauvanika Chopra, Associate Director at The New India Foundation (NIF), which, earlier this year, announced the 12th edition of its NIF Book Fellowships for research and scholarship about Indian history after Independence. While authors, in general, are built for it, it can still get very lonely, says Chopra, pointing out that the fellowship’s community support is as valuable as the monetary benefits it offers. “There is a solid community of NIF fellows, trustees, language experts, jury members, all of whom are incredibly competent,” she says. “They really help make authors feel supported from manuscript to publication, so you never feel like you’re struggling through isolation.”
Several principals of government and private schools in Delhi on Tuesday said the Directorate of Education (DoE) circular from a day earlier, directing schools to conduct classes in ‘hybrid’ mode, had caused confusion regarding day-to-day operations as they did not know how many students would return to school from Wednesday and how would teachers instruct in two modes — online and in person — at once. The DoE circular on Monday had also stated that the option to “exercise online mode of education, wherever available, shall vest with the students and their guardians”. Several schoolteachers also expressed confusion regarding the DoE order. A government schoolteacher said he was unsure of how to cope with the resumption of physical classes, given that the order directing government offices to ensure that 50% of the employees work from home is still in place. On Monday, the Commission for Air Quality Management in the National Capital Region and Adjoining Areas (CAQM) had, on the orders of the Supreme Court, directed schools in Delhi-NCR to shift classes to the hybrid mode, following which the DoE had issued the circular. The court had urged the Centre’s pollution watchdog to consider restarting physical classes due to many students missing out on the mid-day meals and lacking the necessary means to attend classes online. The CAQM had, on November 20, asked schools in Delhi-NCR to shift to the online mode of teaching.