Stiff person syndrome patients share what it’s like to live with the rare disease
Fox News
Two people who are living with stiff person syndrome — a rare neurological disorder that causes muscle rigidity and spasms — shared with Fox News Digital what their experience has been like.
"It is beyond frustrating to literally not know at the start of each day if it will be a good day or a bad day." "Given the rarity of SPS, patients often feel misunderstood, even by health care professionals." "It takes a toll to feel like you are in a medical crisis and yet know that even if you go to the hospital, no one will help you." "It is incredibly empowering to know that you are not alone." Melissa Rudy is senior health editor and a member of the lifestyle team at Fox News Digital. Story tips can be sent to melissa.rudy@fox.com.
The disease is rare, affecting only one or two people for every million. Yet for those who are diagnosed, it can have a devastating impact, causing muscle rigidity, pain and spasms.
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