‘Running into roadblocks’: N.B. family fights to get care for daughter with epilepsy
Global News
A New Brunswick family is struggling to get health care for their young daughter with epilepsy. They're now raising money to get treatment outside the province.
Shana Holloran and Alexander Grant have watched their child turn blue more than any parent ever should.
Their young daughter, Charlotte, has epilepsy and regularly suffers from different types of seizures. On a good day, she has 20 to 50 seizures. On other days, she can have more than 150.
Charlotte, also known as Charlie, first started having seizures when she was eight to 10 months old, but they’ve gotten worse in recent months.
“They’re constant,” Holloran said.
The Moncton, N.B., family is raising money to seek treatment for their daughter in Toronto, as the provincial health-care system has so far failed to find a remedy that works.
Holloran says Charlotte’s health conditions, as well as the numerous medications she takes to control her symptoms, have taken a huge toll on the young girl’s life.
“Incontinence, drooling, nausea, off-balance, unstable, uncoordinated – she’s walking into walls, she’s falling,” she said. “She’s losing weight because she can’t chew her food anymore.”
The loss of basic bodily functions has been challenging for Charlotte, who by nature is outgoing, creative, and playful.
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