Mother frantic to save clinical trial that could cure her daughter: ‘The treatment is sitting in a fridge'
Fox News
A rare, fatal disease called SPG50 affects fewer than 100 people in the world — and one of them is Naomi Lockard, a 3-year-old in Colorado. Her mother is desperate to raise funds to save her life.
Fewer than 100 people in the world are known to have SPG50. "Kids develop paralysis in elementary school, become quadriplegic in high school and pass away in their 20s." "I couldn't just let these kids die. I had to do something." "Doctors are ready. There just isn't enough money to make it happen." "I get calls at least five times a week from families around the world, asking to help me save their kids." Melissa Rudy is senior health editor and a member of the lifestyle team at Fox News Digital. Story tips can be sent to melissa.rudy@fox.com.
Rebekah Lockard, the girl’s mother, is on a mission to raise the funds needed to save her daughter’s life.
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