Family selling dream home to fund life-saving treatment for 5-year-old daughter
Fox News
Tallulah Moon, 5, has SPG56, a degenerative brain disease that is caused by a rare gene mutation. Now, the family is selling their dream home to raise money for their her life-saving therapy.
"We'd gone from watching this beautiful child thrive at 14 months, to regressing to the abilities of a 4-month-old." "We realized that we have to fund this on our own if we want to do this." In 2003, the average cost of bringing a drug to market exceeded $2 billion. Melissa Rudy is senior health editor and a member of the lifestyle team at Fox News Digital. Story tips can be sent to melissa.rudy@fox.com.
Tallulah was a healthy, happy baby until shortly after her first birthday, when she suddenly began to lose her motor skills.
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