Crowd funding platform for rare diseases treatment live, Centre tells High Court
The Hindu
Portal has eight registered hospitals, 40 patients and ₹3,73,300 received as donations.
The Centre on Wednesday informed the Delhi High Court that it has made operational a digital platform for crowd funding of expensive medicines and treatment for rare diseases. Justice Rekha Palli, while appreciating the work done by the government, asked it to update the portal on a regular basis and to take steps for wide publicity for it. It also asked the government to include names of applicants on the portal. On July 14, Justice Palli had cautioned the government of “wilful non-compliance” if it failed to make the platform operational.
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