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They say their children are being denied transplants because of their disabilities. A new federal law may help change that.
CBSN
A patient with disabilities can be denied life-saving organ transplants because of those disabilities, and parents often fear the worst. Families have won protections in many states — including 14 in the last year.
But more than three decades after the Americans with Disabilities Act — which prohibits discrimination based on a person's disability — became federal law, advocates say inequities persist in health care.
According to a 2019 report from the National Council for Disability, "the lives of persons with disabilities continue to be devalued in medical decision-making," and a widely cited 2008 study involving pediatric transplants found 85% percent of organ transplant centers around the country considered a child's neurodevelopmental delay when deciding to add them to the list.
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Washington — President Trump will speak at an investment conference in Miami sponsored by Saudi government entities on Wednesday, an address that comes as the Trump Organization seeks to expand its real estate empire in Saudi Arabia and the president looks to strengthen ties with the Middle East partner.