‘The Remarkable Life of Ibelin’ Review: More Real Than Reality

An unconventional documentary tells the story of a Norwegian gamer — and of how we live life on the internet.

Almost from the start, the internet scrambled our sense of reality. You could never really know if whoever you were talking to was the person they said they were. Now it’s hard to know if they’re even a person.

This is destabilizing and frightening, and also the premise for a good movie. But there has to be more to the story than just the scary parts. No, we don’t exist physically on the internet, but our virtual selves do things that have real-world consequences, and our emotions and minds, in some phenomenological way, extend into cyberspace, too. For better or worse, the internet is a place in which we live and love and rage and mourn. We bring our humanity with us, the bad parts but also the good ones.

Movies haven’t always captured this aspect of 21st-century life well, in part because rendering the internet visually is weird and tricky. I loved Joe Hunting’s 2022 documentary “We Met in Virtual Reality,” filmed entirely inside a V.R. platform, for how it captured love and generosity in virtual space. And now we have Benjamin Ree’s “The Remarkable Life of Ibelin,” which is a rare and beautiful thing: a moving documentary that excavates the question of the “real” in a profoundly humanistic and unconventional way.

“The Remarkable Life of Ibelin” is about Mats Steen, a Norwegian man who died in 2014 at the age of 25. Mats lived out his final years nearly immobilized, the result of being born with Duchenne muscular dystrophy, a rare inherited disease which presently has no cure. Mats’s family knew him as smart and loving, but grieved while watching him grow more withdrawn as his symptoms progressed. He would spend most of his waking hours on his computer, playing games. “Our deepest regret was that he would never experience friends, love, or make a difference in other people’s lives,” his father, Robert, tells Ree.

Mats’s family were loving, attentive and supportive of him to the very end. But they were wrong about the friends and making a difference part. Oh, were they wrong.