Siblings suffering from rare genetic disorder
The Hindu
Parents look for crowdfunding to meet high cost of treatment
Seven-year-old Lashith Venkata Naga Ayyan yearns to walk, run and race motorbikes and cars like his father. So does his five-year-old brother Mokshith. This will remain just a dream without a cure for a rare genetic disorder, spinal muscular atrophy (SMA), which they have been suffering from. Without losing hope, they cheerfully sang a couple of songs as they are sure that their father D. Vinay Kumar, a realtor, and mother Vedavathi, a homemaker, who take care of them 24x7 in turns, will some how arrange for treatment.
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