Quebec mother with brain tumour gets hard-fought, life-saving surgery
Global News
A mom with a rare brain tumour has successfully undergone surgery that wasn't available in Quebec, despite the province's health insurance board denying her coverage.
A mom with a rare brain tumour has successfully undergone surgery that wasn’t available in Quebec, despite the province’s health insurance board (RAMQ) denying her coverage.
Celyn Harding-Jones is proudly donning her hard-earned mark of a warrior: an approximately three-inch scar next to her hairline that was obtained after a thousand-mile-long journey.
“I keep knocking on wood because I don’t even believe it myself but I’m back,” Harding-Jones said with a wide smile.
The mother of two is back to being able to enjoy life without constant and excruciating pain, brain fog and extreme fatigue that she suffered for the last seven years, landing her in the emergency room several times.
The fear of sudden death because of the cyst is now transformed into incomparable joy.
“I don’t have to think about that and I can focus about the things that matter in life,” Harding-Jones said.
Harding-Jones lived with an extremely rare brain tumour called a colloid cyst, one that neurosurgeons in Quebec admittedly don’t have the expertise to operate on, patient files show.
We first met Harding-Jones in May last year, when she was trying to obtain coverage for an ultra-specialized brain operation to remove the tumour that is only available in New York’s Weill Cornell Medicine Brain and Spine Centre.