Pennsylvania parents honor their daughter who died of a rare genetic disease: 'Sweetest girl in the world''
Fox News
Jessica and Dan Roomberg of Pennsylvania created a foundation in honor of their daughter, Mila, who died in 2019 from a rare genetic disease — they are now helping to change pediatric medicine.
When Mila was born on Sept. 16, 2017, the doctors discovered a heart murmur, which they said was not a concern and that it would go away within a year, Jessica Roomberg told Fox News Digital. "How do we continue to parent Mila? How do we continue her legacy?" "She is the heartbeat of our family." "We are really proud of how far we've come, but we have so much to do." Sydney Borchers is a lifestyle production assistant with Fox News Digital.
During the next few weeks following Mila's birth, Jessica Roomberg and her husband noticed some birthmark-looking patches on Mila's back, so they went to a pediatrician in the Philadelphia area to see what exactly this was.
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