
Kingston woman with rare disease scared she is losing her family doctor
Global News
A Kingston woman with a rare disease says she's worried what losing her family doctor will mean for her health.
Mother of two Ashley Stevenson has lived in Kingston all of her life. She says she has a rare disorder called Charcot-Marie-Tooth disease, which gradually weakens the muscles and nerves, making it hard to walk or stand for too long.
In the fall, Stevenson will lose her family doctor.
“My disease does progress rapidly if not looked after. In the end, I will pass from it but with trying to fight it as it is and then without a doctor … it just makes life shorter,” Stevenson told Global News.
A couple of weeks ago Stevenson found out that her physician, Dr. Deanna Russell with the Kingston Health Team, will be leaving the province in October.
Global News reached out to Russell for a comment, but she declined to be interviewed.
“My disease taking me sooner … from our two girls, that’s our fear,” Stevenson says.
She became a patient of Russell 13 years ago when her previous family physician retired. Like thousands of other Kingston residents, she’s now being put on a wait-list for another family physician.
“I put my whole family on the wait-list and I’ve been calling around and doctors are full,” Stevenson says.