Father created a drug to save his son from a rare disease, now other families are desperate to get it
Fox News
When his infant son was diagnosed with a rare, fatal disease, a Canadian father was dismayed to discover there was no treatment or cure — and so he set out to make one himself.
"They said he would be paralyzed from the waist down by age 10, and quadriplegic by age 20." "We want to make sure the trial moves on and these kids get treated." "The biggest challenge in providing treatment for children with rare diseases often comes down to a lack of funding and vision." Melissa Rudy is senior health editor and a member of the lifestyle team at Fox News Digital. Story tips can be sent to melissa.rudy@fox.com.
"He just didn’t seem like he was meeting his milestones," Pirovolakis said.
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