Cystic fibrosis drug 'a relief' for family in North Bay, Ont., but restrictions on cost coverage remain
CBC
A new cystic fibrosis drug is a game-changer for a North Bay family.
Ontario is one of three provinces that announced last month it would provide eligible patients with Trikafta, which costs roughly $300,000 a year at its list price, under the Ontario Health Insurance Plan (OHIP).
Brayden Perron, 15, has lived with cystic fibrosis his entire life. The rare genetic disease affects organs like the lungs, pancreas and liver with mucus that lines those organs and can damage them. In severe cases, cystic fibrosis patients can require a lung transplant.
Cystic Fibrosis Canada estimates about 4,300 Canadians have the disease.
"Luckily, I'm still very healthy," Brayden said. "So I get to participate in all the activities that are presented to me and I don't show real struggle. But people who are less fortunate than me, who have more problems, definitely show a little bit more of a struggle in day-to-day activities."
Brayden and his 11-year-old sister Keira, who also has cystic fibrosis, each take about 40 pills per day to manage the disease.
On Sept. 24, Brayden started taking Trikafta, and says he has already noticed a positive change.