Celine Dion says her fear of stiff person syndrome has been 'replaced with hope'
CTV
When it comes to Celine Dion's ongoing treatment for stiff person syndrome, a rare neurological condition, the singer says she's starting to feel like a new day is coming.
When it comes to Celine Dion’s ongoing treatment for stiff person syndrome, a rare neurological condition, the singer says she’s starting to feel like a new day is coming.
One of the people that has helped Dion find hope amid her health struggle is neurologist Dr. Amanda Piquet, who the singer highlighted in a moving speech on Monday ahead of a screening of her upcoming documentary about her life with the condition.
Dion spoke at a screening of “I Am: Celine Dion” in New York that was also live streamed at an event in Los Angeles, which CNN attended.
During her at-times tearful speech, Dion said that Piquet has “helped me tremendously (and) solved this mystery about my health.”
“In finding ways to manage and treat my condition, Dr. Piquet has delivered a very, very important result for me: She has replaced my fear with hope,” Dion said, as the crowd whistled and cheered for her.
Stiff person syndrome (SPS) is “a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord,” according to the National Institute of Neurological Disorders and Stroke.
Dion announced in 2022 that she was diagnosed with the condition and that she was taking time off from professional commitments to focus on her health. At the time, she said the condition did not allow her “to sing the way I’m used to.”
