Appeal By Girl,7, For Treatment Of Rare Genetic Disorder That Costs 2.5 Crore

Sushil Kumar has requested the government to get the medicines shipped to India so that his daughter can receive treatment in AIIMS hospital itself.

A man working with the Delhi Police has appealed to Prime Minister Narendra Modi for help to treat his seven-year-old daughter who has been diagnosed with a rare genetic disorder. The cost of the treatment would amount to Rs 2.5 crore, said Sushil Kumar, a Class IV employee in the police department. "Namaste (Prime Minister Narendra) Modiji, my name is Mahi. I am aged 7 and my height is not increasing. Will you help me? I want to become a doctor when I grow up. Will you please arrange medicine for me please," Mr Kumar's daughter is heard appealing in the video with folded hands. Mr Kumar's daughter has been diagnosed with Morquio syndrome (MPS) IVA, a rare genetic disorder that can lead to severe short stature, progressive deformity of the spine, among other complications. A disorder leads to a very poor quality of life and limited life span of the affected individual. Mr Kumar, who earns Rs 27,000 monthly, said that he has taken a personal loan of 10 lakh rupees in addition to a loan of Rs 1 lakh from the police department to cover the treatment cost.