Alberta brothers team up to help sister battling rare genetic disease
Global News
A pair of Alberta brothers is rallying around their younger sister battling a rare genetic disease.
A pair of Ardrossan, Alta., brothers is rallying around their younger sister battling a rare genetic disease.
Ryan, Nikolas and Jillian Michaud are incredibly close.
“She’s very important to us, She loves to play. She’s very goofy,” said 11-year-old Nikolas said about Jillian.
“She means a lot, and one of my favourite things about her is her hugs,” 13-year-old Ryan added.
Nine-year-old Jillian has a rare genetic disorder called Smith-Magenis syndrome (SMS) that affects many parts of the body. She was diagnosed at around three years old.
“She has a deletion of chromosome 17,” mom Charlene Michaud said. “With that, she has a lot of all-encompassing characteristics that affect her life.”
The two that are a big struggle are sleep and behaviour.
“Every day starts anywhere between 4 a.m. to 5 a.m.,” dad Jason Michaud explained.
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