A mother's hope for treating ALS

A treatment under FDA review could change my son's life. He has already received multiple doses, and it helped him regain the ability to breathe, eat and move his hands.

Deb Bellina is mother and caregiver to her son Matt, and a member of ALS Momma Bears advocating for the more than 30,000 people living with the disease.

But hope only goes so far. Nearly a decade later, people with ALS still have no effective treatment options—only the assurance of a slow, humiliating death.

An experimental treatment under FDA review, debamestrocel, could change all that. My son Matt is the only person to receive multiple doses of the treatment through an alternative pathway. It helped him regain the ability to breathe, eat and move his hands.